Jul. 30th, 2015 He loves me?

One of my greatest frustrations as a parent is wondering if Emma knows she is loved. Does she? Is she secure, certain, confident that her parents love her? 

After years of therapy, Emma can articulate most words, but that doesnโ€™t mean we have conversations. She gets her point across, but abstract feelings and emotions? No. We are left to wonder.

While her brothers are experts at communicating their feelings about everything from the fairness of life to the tastiness of the food on their plates, Emma often resorts to wordless whines or grunts of frustration when she isnโ€™t getting her way. The other day she stood at the bottom of the stairs for several minutes trying to formulate a word. When she yelled out, โ€œMad!โ€ I had to force myself not to throw a party. I was thrilled that sheโ€™d been able to express what she was feeling. 

(Not that it changed anything โ€” she was NOT taking those crayons up the stairs. The artist-in-residence lost those privileges a LONG time ago).

But back to my point. We tell her we love her. We show her love. We quite literally pour our lives into hers and make every effort to give her a joyful life. 

But the reality is that there are things about Emmaโ€™s life that are challenging. For her and for us.

One of our biggest challenges is food.

Emma is allergic to just about everything. Itโ€™s easier to list the foods she CAN have than it is to list the foods she canโ€™t. On top of that, she has eosinophilic esophagitis. Basically that means certain foods irritate and damage the lining of her esophagus. The solution? Donโ€™t eat those foods.

Because of this, Emmaโ€™s dietary landscape is quite small. 

But she knows there is more out there. And she wants it!

Sheโ€™s her motherโ€™s daughter and if she can get her hands on an Oreo, sheโ€™s going to eat it. Sheโ€™s well acquainted with cake, and she knows that the pizza she eats and the pizza everyone else eats are NOT the same. If you leave her alone in a room with access to Goldfish or brownies, you can expect to find them missing when you return. 

I often wonder if she thinks we dislike her because we donโ€™t allow her to have those things. Does she think we are unloving or uncaring?

When I see her grab a peanut butter and jelly sandwich and I take it out of her hand right before she eats a bite, does she think Iโ€™m MEAN?

After all, those foods are yummy. Her brothers can eat them. Why canโ€™t she? And bless her heart, she does not understand how bad those things are for her. Itโ€™s so hard to communicate why they arenโ€™t bad for everyone else, but they are for her. 

So when I have a chance to give her something that she enjoys, I try to take it. 

I had that chance this morning. When I dropped her brothers off for camp, I turned to her with a big smile and said, โ€œEmma, letโ€™s go to McDonalds. Iโ€™ll get you a hash brown. (And mommy will get a ginormous iced coffee).โ€

Her response? โ€œChick-fil-A.โ€

My response? โ€œBaby, McDonaldโ€™s is closer. (And while I LOVE me some Chick-fil-A, I prefer McDonaldโ€™s iced coffee).โ€

She said okay and I pointed the van toward McDonaldโ€™s. But I felt like a mean mommy. We got a quarter of a mile down the road and her little voice piped up from the back of the vanโ€ฆ.โ€Chick-fil-A.โ€

I turned the van around. 

I drove a mile in the opposite direction all the while thinking that we were going to spend more money, I was going to get a so-so iced coffee, and she probably wouldnโ€™t even eat the stupid hash rounds.

When we pulled into the drive-thru, Emma sang out, โ€œYeah! The right place!โ€

In that moment, the extra time, money, and not-so-awesome coffee no longer mattered. Iโ€™d made her happy and I was as thrilled as she was. It made my morning to be able to give her something she wanted. To bring her some joy. To say โ€œyesโ€ to her. And even though it meant jumping through a few extra hoops, her happiness filled me with delight.

As we pulled from the parking lot, I felt that nudge in my spirit.

โ€œYou know thatโ€™s how I feel about you.โ€

And I had to ask myselfโ€ฆdo I?

When God takes something that I had in my hand? When He refuses to give me something, even as He lavishes it on someone else? When no matter how much I pray for something, He keeps saying, โ€œNO?โ€

Do I believe that He loves me?

Do I?

I know I donโ€™t act like I do. I get mad. I even tell Him Iโ€™m mad. Or sometimes I just pout and trust that Heโ€™s clued in to my frustration. 

Does that hurt Him? Does He look at me, the One who loved me enough to send His only Son to die for me, and does He wonder what it would take to convince me? Heโ€™s already given me everything.

Well, except for those things that He knows are bad for me.

They arenโ€™t necessarily bad things. And they arenโ€™t even bad for everyone. But they are bad for me. Maybe they would lead me to sin. Maybe they would ruin my life in a way I canโ€™t fathom. Maybe they would cause me to chase after things other than to chase after Him. Maybe they would, quite literally, kill me. 

So to those things, He says no.

Not because Heโ€™s mean.

But because He loves me.

Iโ€™m sitting here with tears in my eyes and a barely sipped on iced coffee, listening to Emma play in her room, and Iโ€™m amazed at the lengths my Father goes to to remind me of His love.

Iโ€™m not sure whatโ€™s going on in your world. Iโ€™m not sure why Heโ€™s told you โ€œnoโ€ or why Heโ€™s not giving you something you wantโ€”maybe even something you really believe you need.

I am sure of this. He loves you. He loves me. 

Someday, I believe I will be able to talk to Emma about this stuff. I donโ€™t know what she will be like in heaven, but I have a peace that there will come a time when she will understand. That some of the things weโ€™ve missed out on here will be ours there.

I wonderโ€ฆ does He feel that way about us? Does He look forward to the day when once and for all we will be eternally certain of His love for us?


And I wonder how different life here would be if we lived each day like the beloved children we are?

For those of you who are new here and may not already know, our daughter Emma was born with Rubinstein-Taybi Syndrome, a syndrome some people say is caused by a โ€œmisspellingโ€ of a specific chromosome. We say God is an excellent speller and He makes no mistakes. We believe that Emma is EXACTLY who God intended and created her to be. 
Grace and peace,
Lynn

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12 Comments

  1. Love this! Thank you for sharing!!

  2. Mary Curry says:

    Oh, Lynn. You write so beautifully from your heart. I'm in tears reading this. Thank you!

  3. admin says:

    Rhonda – Thank you. I'm praying for a big "yes!" to be headed your way soon!
    Mary – Thank you!! I can't wait to read your words soon!

  4. Lynn, this is a beautiful post! I was talking to my mom this morning about His love. I think I understand it then I'm smacked in the face with my disbelief and am reminded agin how much he truly loves us! And that he will do anything and everything for us…. Even tell us "no"!

  5. admin says:

    Thanks, Joelle! Such a great point. I guess we'll spend eternity trying to absorb it all…and never will!

  6. Marty Looney says:

    I loved reading from your heart. Very thought provoking and pulls at the heart strings. Thank you for making a difference in the lives of others.

  7. This was amazing and GOOD to hear today. I needed to hear these words and know that 'No' doesn't mean I'm not loved or loved any less. Thank you for sharing such an emotional truth!

  8. Cathy Baker says:

    I enjoy all of your posts, Lynn, but none more than this one. Although we're in different circumstances (spoken like a true empty-nester) there is much truth to drink from this well of knowledge.

    And for what it's worth, I too enjoy McD's iced coffee…except when the woman making it argues with me that there's no such thing as sugar-free vanilla syrup. Yep, that's who I want making my iced coffee!

  9. admin says:

    Marty! Thank you so much!
    Hey Tammy – I'm so glad this spoke to you.
    Oh Cathy – That means so much to me. And as for the iced coffee…I always get the "you don't want ANY sweetener" question. I usually have to tell them at least twice that I want NO sweetener – sugar free or not, before they believe me! They get it right most of the time, but I've learned to take a sip before I pull out of the drive thru!

  10. This is such a beautiful post, Lynn. As the time for my daughter's flight to heaven came close, she could no longer communicate with me. Heaven will be a beautiful reunion with a lot to share!

  11. admin says:

    Thank you, Dee Dee! That means so much to me. I can't wait to meet your daughter! So much to look forward to!

  12. What a beautiful anecdote of love. Your writing. Your heart. Special as always.